Friday, August 19, 2005


Questions are often raised as to what exactly a non-profit organization or its leaders and members can do when it comes to advocacy and political action. There are strict guidelines for 501(c)3 tax-exempt organizations as to how much time and money can be spent on these sorts of activities.

An organization's charitable status can be called into question if these activities are seen to be excessive, outside the boundaries of tax regulations, and/or not in line with the mission of the organization.
(See Lobbying By Nonprofits here.)

As private citizens, however, there is no limit on our participation!

The AICA is not an incorporated entity; it is neither a private foundation nor a public charity. We are individuals and families working diligently with our elected officials to pass comprehensive legislation forcing insurance and managed care companies to cover medically-necessary care for those with craniofacial birth anomalies and facial differences caused by trauma, illness and disease.

Our purpose is to share ideas and information, interface with elected officials, increase the general public's understanding of craniofacial issues, and demonstrate the overall strength of the craniofacial community - socially, emotionally and politically.

Whether you are willing to do a little legwork or a lot to help pass this type of legislation, AICA will provide as much assistance and information as possible to assist you during that process. Let us know what you have to offer, so we can share that with other independent advocates across the country.

If you are in need of assistance in your battle with an insurance or managed care company, please visit the Insurance page at the cleftAdvocate website for further information.

Looking forward to working with you!

Debbie Oliver